FRIDAY, APRIL 18, 2008 05:38 PM, PDT
Didn't get into my room 10A5 until after 5pm. Chemo didn't start until nearly midnight. Side effects were nasty. Nausea was heightened. Chemo was Round B of the Hyper C VAD. I did actually get to the point where I just wanted everything yanked out and let me go home and die. Through some wonderful doctors who kept stopping in to help, I was put on Ativan/Lorazepam which helps with both nausea and with anxiety. It did help make things better. I was in St Joe's for 6 days this time.

WEDNESDAY, APRIL 16, 2008 08:32 PM, PDT
I felt pretty stinkin' good for a couple of days. I was even excited about starting my next round of chemo. I packed my own towels, soap, pj's ...you know, make it more of a hotel with my tastes and smells.

TUESDAY, APRIL 15, 2008 11:00 AM, PDT
Appt with Dr. Norman. chemo through the ommaya port in the head with some extraction of spinal fluid for testing. Announced that my blood counts were good and that we'd start the next round of chemo on Friday the 18th. It always comes too soon. We were to call St Joe's for an open bed starting at 8am.

SUNDAY, APRIL 13, 2008 08:24 PM, PDT
I was released from St Joes after 6 days for complications with chemo side effects.

WEDNESDAY, APRIL 09, 2008 08:22 PM, PDT
Rachel returns home from England.

TUESDAY, APRIL 08, 2008 08:20 AM, PDT
Appt with Dr. Norman for an ommaya chemo administration. Checked lots of blood rates, explained my rectal pains. We left at 4 pm with more meds and shots of inpugen to be taken every day to raise my white blood counts. About 8 pm I was in the bathroom screaming in pain (diarrhea) every 2 hours and through the night. Finally, about 5am I told my mom that I just couldn't stand it any more. She woke my dad up and he rushed me, literally, to St Joe's. I don't know how he didn't get a ticket or into an accident! M;y husband met us at the ER and couldn't figure out how dad beat us here. We spent all day in an exam room testing pain pills. I was too scared to attempt any more BM's. I was admitted to St Joes for 6 days. Very tough days.

SATURDAY, APRIL 05, 2008 05:00 PM, PDT
4 days after chemo ends in Virginia Mason Hospital the sores on my lips and mouth as well as down my esophagus and through my gut to my bowels and rectum become pronounced and painful.